Liah Fitton age 14 from Ballincollig with family member
Join our new Family Advisory Council!
We are seeking members to join our new Family Advisory Council, aiming to enhance the experience, skills, and knowledge base of our team and contribute to the development of the services we provide.
What is the Family Advisory Council?
The Family Advisory Council will consist of up to 10 members, including the parents, grandparents, caregivers and guardians of children who live with lifelong physical health conditions. The group will provide advice and guidance to assist the Helium Arts team in achieving their mission of generating creative encounters for children with lifelong health conditions to improve well-being and creativity.
If you are interested in joining or would like to discuss the role further, please apply here or call 083 010 3240.
Who We’re Looking For?
We are particularly looking for parents, grandparents, caregivers, and guardians of children who live with a lifelong health condition.
We welcome a diverse range of applicants and cultural perspectives from across the country.
Qualities and skills useful for the role
- A genuine interest in creativity and arts and an understanding of the value of creativity in children’s lives.
- Insight into what it is like to parent or care for a child living with a lifelong physical health condition.
- Good communication and interpersonal skills.
- Impartiality, fairness and the ability to respect confidences.
What’s Involved?
- Attend quarterly group meetings (3-4 times per year). Meetings will be held online via Zoom. We may try to meet in person once per year.
- Offering guidance and expertise to ensure we are providing the best possible experience for the children and families who use our services.
- Offer insight on the unique perspective of a parents, grandparents, caregivers and guardians who supports a child living with a lifelong physical health condition.
- Acting in the best interest of the organisation. Provide local knowledge of other organisations and support groups that might benefit families supported by Helium Arts.
About Helium Arts
In Ireland, 13% (136,000) of children live with the challenges of a lifelong health condition such as diabetes, epilepsy, juvenile arthritis, autism, and others. 18,000 of these children are considered as severely hampered in their everyday lives, according to the most recent Growing Up in Ireland Report. Children living with health conditions face loneliness, stress, anxiety, and feel defined by their condition. They experience: stigma associated with their condition, social isolation and loneliness and fewer quality friendships.
Helium Arts brings positivity to these children’s lives through award-winning, participatory arts programmes. Our creative projects take place in hospital, health and community settings around Ireland, transforming the healthcare experience of young people and those who care for them through art, imagination and play.
We are registered with the Charities Regulator as a charity organisation.