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Community Stories

Lauren’s Story

In an instant, Lauren went from being a normal kid to having to go to the hospital three times a week for dialysis. It all started in February 2013. Lauren hadn’t been feeling very well for a few months and her family decided to take her to the doctor. The next day she was diagnosed with renal failure and put on an organ transplant waiting list. While waiting for a kidney transplant, Lauren had to travel to the hospital every Monday, Wednesday, and Friday for dialysis, which meant she didn’t attend a full week of school for 15 months.

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Community Stories

Ailís’s Story

In 2017, Helium Arts’ Pop Up Picnic visited family homes in Kildare, bringing a sprinkling of joy, creativity and play to young children with complex needs. One of those children was Ailís, who was born with a rare genetic disorder and has both complex intellectual and physical needs. Through the project, Ailís had the opportunity to enjoy multi-sensory performances while bonding with her mother, Eithne.

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Community Stories

Stephen’s Story

Stephen enjoyed his day-to-day life like every child, until he got his first seizure at 13 years old. A short while later, he experienced a second seizure and was diagnosed with epilepsy. Stephen had been bullied by other children before his diagnosis and he found it hard to be open about his condition because it made the bullying worse.

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